8/10/2021 0 Comments
Autism and TSC
Tuberous Sclerosis Complex (TSC) is a rare genetic disease that causes tumors to form across the entire body. As the leading genetic cause of autism and epilepsy, TSC impacts 1 million people nationwide. But, in addition to the lasting health problems the complex creates, what's most troubling is the lack of understanding of the disease ... and its relation to autism.
Join us to learn more from the TSC Alliance CEO, Kari Rosbeck and the Alliance's Chief Scientific Officer, Dr. Steve Roberds. https://www.tscalliance.org/
Kari Luther Rosbeck, President & Chief Executive Officer
Kari joined the TSC Alliance in June 2001 and became President and CEO in November 2007. She is responsible for the overall management and administration of the organization. This includes strategic planning, implementation of organizational strategies and evaluation of results, in conjunction with the board of directors, to ensure the organization meets its mission to find a cure for tuberous sclerosis complex (TSC) while improving the lives of those affected. During Kari’s tenure as President and CEO, the TSC Alliance established a comprehensive research program fostering collaboration with industry and academia to move treatments for TSC forward in a more expedited way.
Steven L. Roberds, PhD Chief Scientific Officer
Steve joined the TSC Alliance staff in 2011 as Chief Scientific Officer. In this role, Steve leads the development and execution of the TSC Alliance’s research strategy through partnerships and conversations with all stakeholders, including individuals and families affected by TSC, basic and clinical researchers in academia and industry, healthcare providers, government agencies involved in medical research, and other non-profit organizations. Steve led the implementation of the 2012 TSC Clinical Consensus Conference and an update to the consensus guidelines in 2021.
Crystal Sanford, M.Ed.. M.A. CCC-SLP
Crystal is the owner and director of Sanford Autism Consulting (https://www.sdautismhelp.com), a consulting practice offering IEP advocacy and parent empowerment classes for fellow special needs families throughout the U.S. Crystal specializes in supporting fellow families impacted by Autism, as well as other unique challenges such as learning disabilities and ADHD. To learn more about IEP assistance and help advocating for the special education your child deserves, contact Crystal at firstname.lastname@example.org.
Download your freebie! Special education parent rights as easy as 1...2...3: https://iep.sdautismhelp.com/know-your-iep-rights
Want to work with Crystal? Here's how:
Become your child’s IEP hero by taking Crystal’s online video class on demand, at your convenience:
Monthly Conference: California Regional Center families can attend our Crystal Clear IEP Conference, offered monthly on Saturdays. Typically there is no cost to families. Please contact your service coordinator to confirm and register: https://www.sdautismhelp.com/crystal-clear-iep.html.
Get inside tips and more in Crystal’s monthly newsletter: https://www.sdautismhelp.com/contact.html
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About the Thriving Special Families Podcast...
Thriving Special Families is the perfect podcast for special needs families...especially those impacted by Autism. Join us for insight, humor, and hope along your special needs journey. Our host, Crystal Sanford, M.Ed., M.A. CCC-SLP, interviews experts, community members, caregivers, and other special needs allies. She also shares from her experiences as an Autism parent, speech pathologist, and educational advocate. This is our podcast special needs families...let's thrive!!
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